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Perspective

The Ethical Dilemma of Futile Care in 
End-of-Life Decision-Making 

Makinley Smith1

1 University of Missouri

In end-of-life care, one of the most contentious ethical dilemmas is the continuation of futile medical interventions. Futile care refers to treatments unlikely to achieve meaningful recovery or improve a patient’s quality of life.1 Despite this, many patients and families advocate for exhaustive measures, driven by hope, emotional distress, or cultural and religious beliefs. This raises a critical ethical question: how should healthcare providers balance respect for patient autonomy with their professional obligation to avoid causing harm or wasting limited medical resources?

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     One illustrative case is the ongoing debate around cardiopulmonary resuscitation (CPR) for terminally ill patients. Studies indicate that the success rate of CPR in such cases is alarmingly low, often leading to severe complications including prolonged suffering and prolonged life in a diminished state.2 Nevertheless, families frequently request this intervention, seeing it as a final effort to preserve life, even when the patient’s prognosis is dire.3 The principle of nonmaleficence obligates healthcare providers to minimize harm to patients.4 When CPR is used to preserve the life of a terminally ill patient but ultimately causes harm, this principle is violated. Patients who survive CPR may experience fractured ribs, hypoxic brain injury, and an extended but poor-quality life, which contradicts the intent of medical care to promote well-being.5 Furthermore, the principle of justice must also be considered, as futile interventions consume scarce medical resources that could be redirected to patients with a greater chance of recovery.6 These ethical tensions place providers in a difficult position, balancing the duty to respect patient and family wishes while ensuring that medical interventions remain aligned with professional integrity and the best interests of all patients.

 

     Complicating matters further, healthcare systems often lack clear policies or guidelines for handling requests for futile care, leaving decisions to the subjective judgment of individual providers.7 Some hospitals have attempted to address this issue through formal policies. For example, Texas implemented the Texas Advance Directives Act (TADA), which allows hospitals to withdraw life-sustaining treatment deemed futile after an ethics committee review, providing a structured process for decision-making.8 However, these policies also raise concerns about how to fairly balance institutional guidelines with individual patient rights, demonstrating the ongoing complexity of futile care decisions.

 

     Advanced care planning and transparent communication are essential in addressing this dilemma. Open discussions about the goals of care, likely outcomes, and available alternatives can empower patients and families to make informed decisions. Palliative care specialists also play a vital role, focusing on comfort and quality of life rather than prolonging suffering through aggressive measures. Their expertise in symptom management, psychological support, and end-of-life care planning can help families navigate difficult choices with greater clarity. For example, a study at Massachusetts General Hospital found that early palliative care interventions led to both better quality of life and, in some cases, longer survival compared to aggressive treatment alone.9 Hospital systems such as UCLA Health have developed palliative care programs that integrate ethics consultations, aiming to guide families toward comfort-focused care rather than aggressive interventions with minimal benefit.10 Such policies can improve end-of-life experiences by reducing unnecessary suffering and emotional distress for both patients and families while ensuring healthcare resources are used more effectively.

 

     Ultimately, the challenge lies in balancing compassion and pragmatism. As healthcare resources become increasingly strained, the ethical implications of futile care require careful consideration for individual patients and society. Should the right to autonomy outweigh the collective good, or is there an ethical obligation to establish clearer boundaries around futile interventions? These questions must be addressed as society strives for a more equitable and compassionate approach to end-of-life care.

​Works Cited

  1. Sarik L, Prkic I, Jukic M. Futile Treatment—A Review. Journal of Bioethical Inquiry. 2017;14:329-337. doi:https://doi.org/10.1007/s11673-017-9793-x

  2. Sittisombut S, Love E, Sitthi-amorn C. Cardiopulmonary resuscitation performed in patients with terminal illness in Chiang Mai University Hospital, Thailand. International Journal of Epidemiology. 2001;30(4):896-898. doi:https://doi.org/10.1093/ije/30.4.896

  3. Akman U, Koyuncu A. Family opinions on resuscitation and participation in end-of life care in the emergency department: A cross-sectional study. Turk J Emerg Med. 2024;24(1):48-54. doi:https://doi.org/10.4103/tjem.tjem_164_23.

  4. Girdler S, Girdler J, Tarpada S, Morris M. Nonmaleficence in medical training: Balancing patient care and efficient education. Indian J Med Ethics. 2018;4(2):129. doi:https://doi.org/10.20529/IJME.2018.100

  5. Ahmad A, Mudasser S, Khan M, Abdoun H. Outcomes of Cardiopulmonary Resuscitation and Estimation of Healthcare Costs in Potential ‘Do Not Resuscitate’ Cases. Sultan Qaboos University Medical Journal. 2016;16(1):27-34. doi:10.18295/squmj.2016.16.01.006 

  6. Gillon R. Justice and allocation of medical resources. Br Med J (Clin Res Ed). 1985;291(6490):266-8. doi:10.1136/bmj.291.6490.266 

  7. Clark P. Medical Futility: Legal and Ethical Analysis. AMA Journal of Ethics. 2007;9(5):375-383. doi:10.1001/virtualmentor.2007.9.5.msoc1-0705.

  8. Fine R. Medical futility and the Texas Advance Directives Act of 1999. Proc (Bayl Univ Med Cent). 2000;13(2):144-7. doi:10.1080/08998280.2000.11927658

  9. Mass General Cancer Center. Improved Outcomes and Palliative Care. https://www.massgeneral.org/cancer-center/clinician-resources/advances/improved-outcomes-and-palliative-care. Published August 1, 2017. Accessed January 21, 2025. 

  10. Singer S. End-of-life care program at UCLA benefited dying patients and loved ones despite COVID restrictions. UCLA Newsroom. https://newsroom.ucla.edu/releases/three-wishes-program-benefits-ucla-health-covid19. Published October 18, 2021. Accessed January 21, 2025.

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